Goldenhar

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goldenhar

Links to information and resources for Goldenhar syndrome. Goldenhar Syndrome Guide picks: A syndrome of birth defects usually involving certain parts of the head and face, and
Conditions and syndromes that can result in deafblindness Goldenhar Syndrome
What is Goldenhar Syndrome? Goldenhar Syndrome is a congenital birth defect which involves deformities of the face. It usually affects one side of the face only.
Goldenhar's syndrome: A syndrome of dermoid cysts, auricular appendices, asymmetrical malformations of the face, and vertebral abnormalities. Also known as: Goldenhar-Gorlin
Goldenhar UK Support Group. This site has been set up to support families throughout the U.K. who face the day to day challenges of supporting relatives with Goldenhar Syndrome
Goldenhar syndrome is a developmental abnormality of the ear area. NORD (National Organization for Rare Diseases) tells us this about the condition:
With over 35 years experience, the ICF Institute in Dallas, Texas has helped 16,000 children with craniofacial deformities such as Goldenhar Syndrome. Patients from 75 countries
We're preparing to launch our new website, so check back real soon!  In the meantime, visit us at AmeriFace.
Personal account on growing up with oculoauriculovertebral dysplasia. Includes photographs and music.

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